EPIPED EEG Course Bologna on 29 September to 3 October 2024 in Italy which was endorsed by the EPNS. Report:

The 2024 course welcomed 24 participants onsite and 9 online, as well as 12 tutors and speakers, whose 3 online, who animated the sessions on consecutive days. During the training phase, the students were presented with clinical cases to discuss in small groups of max. 8 people + 2 tutors . One training table was dedicated exclusively to the online participants, to ensure an active participation.

 

 

Dravet Syndrome Conference on 14-15 March 2024 in Madrid which was endorsed by the EPNS. Report:

The European Dravet Syndrome Conference was held in Madrid on March 14-15, it was attended by numerous international healthcare professionals, researchers and industry professionals in the field of Dravet syndrome and related epilepsies, including Dr Helen Cross and Dr Lieven Lagae.

The event was a kaleidoscope of knowledge, collaboration, and hope, highlighting the impact of Dravet syndrome impact on families and the latest advancements in treatment and research. It showcased significant strides in gene therapy, drug development, and the use of AI in diagnosing rare diseases, culminating in a renewed sense of optimism among attendees.

 

 

 

Dravet Syndrome Conference on 23 March 2023 in Madrid which was endorsed by the EPNS. Report:

Last March 23 saw the Dravet Syndrome Conference 2023, which was attended by numerous international healthcare professionals, researchers and industry professionals in the field of Dravet syndrome and related epilepsies, including Dr Charlotte Dravet. This day provided an excellent opportunity to learn more about this rare disease, its research pipeline, and to discuss and exchange ideas with friends, colleagues, and international experts.

El pasado 23 de marzo se celebró la Conferencia Internacional sobre el Síndrome de Dravet 2023, a la que asistieron numerosos profesionales sanitarios internacionales, investigadores y profesionales de la industria en el campo del síndrome de Dravet y epilepsias relacionadas, incluida la Dra. Charlotte Dravet. Esta jornada brindó una excelente oportunidad para aprender más sobre esta enfermedad rara, su investigación en curso, y para debatir e intercambiar ideas con amigos, colegas, y expertos internacionales.